Amelie McFadyen is HPV Awareness’ Executive Director. She is in charge of overseeing all the personnel and projects, as well as organizing fundraising events, and developing a marketing strategy. Ms. McFadyen has a bachelor’s degree in Sexology, as well as a master’s degree in Sexology: Research and intervention from Université du Québec à Montréal, making her an expert on sexual health. Her thesis focused on identifying the risk reduction strategies used by HIV-negative gay, bisexual and other men who have sex with men in Montreal. She has presented on her thesis in five different conferences both nationally and internationally.
Ms. McFadyen has five years of experience in the research field, working on various sexual health projects. She also coordinated two projects with the aim of culturally adapting a Montreal sexual health program for Toronto in Canada, as well as for Burkina Faso in Africa. Following an internship at a community organization working with people living with HIV/AIDS, she volunteered to give a sexual health program for three years.
Dr. Frappier is a paediatrician specializing in adolescent medicine, a specialty for which he is a founding member at the Royal College of Physicians and Surgeons of Canada. He is a professor of paediatrics at the Faculty of Medicine of the University of Montreal.
Dr. Frappier is director of the Department of Paediatrics at the University of Montreal and the CHU Sainte-Justine. He was head of section of adolescent medicine (2000-14) and head of the Social Paediatrics at CHU Sainte-Justine. He was president of the Canadian Paediatric Society (2011-12); he is the President of the Assault Prevention Center of Montreal, secretary-treasurer and executive board member of the International Association for Adolescent Health. Dr. Frappier was named Mentor of the Year 2009 for Quebec by the Royal College of Physicians and Surgeons of Canada, and received the award for the excellent work around violence against children, Marie-Vincent Foundation 1999.
His many researches focus on sexuality, sexual assault, eating disorders, and also, especially in marginalized youth, physical and mental health, sexually transmitted infections (STIs) and HIV. He has over 180 articles, book chapters and reports from government or non-governmental agencies. He has organized more than 30 provincial, Canadian, or international scientific conferences. Dr. Frappier has been invited to present on the five continents.
A pharmacist by training, Roger Simard rapidly veered towards the business world. He was a pharmaceutical representative, then Sales Manager at Genentech, the first biotechnology company to launch a recombinant-DNA therapeutic on the market. At the beginning of the Internet in 1995, he co-founded Conceptis Technologies, the company that launched the first interactive online medical education program in 1998. In 1999, Roger founded the portal www.theheart.org with Dr. Eric Topol, the author of "The creative destruction of medicine", "The patient will see you now", and "Deep Medicine". After selling the company to WebMd in 2005, Roger re-certified as a clinical pharmacist and founded Pharmacy 3.0 in 2014 to harness the potential of connected health, pharmacogenomics, and pharmaceutical care. He was the first pharmacist to remotely monitor seniors using wearables and connected health devices paired to an electronic dashboard in 2015.
Today, Roger advises public and private organizations, including the Canadian Red Cross and the World Health Organization (WHO), on health and innovations. He is a speaker at various conferences and writes a technology intelligence report on digital health.
George Wurtak is the Executive Director of the Consortium for Infectious Disease Control (CIDC). He also serves as Director of the Canadian Network on HPV Prevention (CNHP), and is founder and Co-Chair of the International Indigenous HPV Alliance (IIHpvA). George’s professional interests involve the control of infectious diseases, with a special focus on HPV, and on Indigenous health. Prior to serving as the Executive Director of CIDC George served as Director of Programs for the International Centre for Infectious Diseases. His previous positions include Director of Cancer Control Programs, and Director of Aboriginal Initiatives, with the Canadian Cancer Society (Manitoba). George has coordinated and conducted many research studies, evaluation surveys, efficacy reviews, medical education webinars and seminars, workshops, conference presentations and has published papers on infectious diseases and educational topics.
Dr. Ghislain Sangwa-Lugoma (GSL) is a gynecologist obstetrician by training. In addition to medical practice, his professional experience includes research in cancer epidemiology, training of healthcare professionals, academic management and healthcare services planning.
His interest in cervical cancer prevention dates back to his years of clinical practice and specialization in the Democratic Republic of Congo (DRC), where due to a lack of prevention programmes, the diagnosis of cervical cancer is often late. To help address this scourge, GSL has decided to focus its career on cancer prevention. Through his postdoctoral fellowship in the Department of Oncology at McGill University and the Department of Gynecology-Oncology at the Centre Hospital-Universitaire de l'Université de Montréal, he acquired the clinical skills required for cervical cancer prevention and the knowledge necessary for the validation of cervical cancer screening methods. As a result, he was able to carry out one of the few cervical cancer screening campaigns conducted among the general population in the DRC.
In addition, GSL has worked in the academic field, as instructor and program manager in the DRC (University of Kinshasa) and in Canada (University of Alberta). He is currently Director of Knowledge Development and Organizational Performance at the Eastern Ontario Health Services Network and sits on the Board of Directors of the Institut du Savoir Montfort - Monfort Hospital (Ottawa, Canada).
Keven Joyal-Desmarais reviews and assesses presentation and intervention materials, and provides feedback based on current scientific knowledge in the areas of sexual health, education, and psychological interventions. He is also involved in the design and analytical steps of our evaluative research into the effectiveness of our work.
In 2013, he graduated from McGill University with a First Class Honors Degree in Psychology. As part of his degree, he was involved in research on mental health and well-being, with a particular focus on depression and self-compassion. In 2012-13, he held an internship at the Counselling Center of Vanier College in Montreal, where he worked on developing and providing an intervention to reduce the prevalence of sexual assaults on campus. From 2013-14, he worked as a research assistant at the Jewish General Hospital’s Psychosocial Oncology Lab, conducting research on decision-making for the HPV vaccine.
Keven Joyal-Desmarais is currently pursuing a PhD in Social Psychology at the University of Minnesota, with supporting programs in quantitative analyses and in health communication. His areas of research deal with motivation and communication, and how these play a role in promoting health and prosocial behaviors. He is also an administrative assistant for the Center for the Study of the Individual and Society (CSIS) at the University of Minnesota, and acts as a board member of the University’s Council of International Graduate Students.
Midori Nishioka conducts literature searches, finding reputable resources to base our workshop and presentations. She also reviews and evaluates our projects on multiple criteria such as effectiveness of communication and inclusiveness of diverse populations. She is an integral part of our research project that evaluates the effectiveness of our work.
Midori graduated from McGill University’s Honours Psychology program in 2013, having written two theses on cultural identity and mental health. She worked as a research lab coordinator for two years at McGill, during which she managed multiple research projects investigating relationship issues. She is currently enrolled in a doctoral program at the University of Waterloo, conducting research in the area of motivation and ethics.
Eva Villalba is the Executive Director of the Coalition Priorité Cancer, and has been involved in cancer patient advocacy and nonprofits since 2008. She was Vice-President of the Coalition Priorité Cancer from 2012-2016, and is currently the President of the Regroupement au service des organismes et groupes d'entraide communautaire en oncologie du Québec (RPOGECO). She specializes in fundraising and philantropy and is an active member of the Association of Fundraising Professionals (AFP).
She graduated from McGill University in 2004 with a double major in Psychology and Applied Linguistics, then completed an MBA from HEC Montréal in 2012 with the objective to apply best business practices to the non-profit sector.
Eva is passionate about good governance, philanthropy and community impact, and social innovation. She is fluent in French, English, and Spanish, and has basic knowledge of Italian.
In 2012, at the age of 35, Marilou was diagnosed with cervical cancer, caused by HPV 16. Since the cancer metastasized in 2015, she is now considered incurable. A trained librarian, Marilou understood early on the importance of learning about the disease and the different treatments available to be able to collaborate with her medical team in making decisions. Having understood the various issues related to medical advances, new technologies and the participation of patients in clinical trials, Marilou is involved, despite the side effects of the many treatments received, to defend the interests of patients with HPV-related cancers.
Marilou has always tried to remain realistic, but positive about her disease. Thanks to research (immunotherapy, targeted therapies, use of big data, etc.), she believes that cancer will become a chronic disease in the coming years.
An open source specialist, she defends the scientific method, the use of evidence and the fight against pseudoscience.
Now suffering from chronic fatigue, Marilou hopes to raise awareness of the different side effects caused by treatments for HPV-related cancers. Exhaustion, anxiety, loss of fertility, early menopause, reduction of 1/3 of her vagina, she has to deal with this new reality which is unfortunately little known to the general public. Indeed, HPV-related female cancers (cancers of the cervix, vagina, vulva) get much less media attention than other cancers that affect women. And yet ...
Marilou is passionate about travel, knowledge, culture, art, science, everything!
Jane was President and Board Chair of Canada’s first Ronald McDonald House in Toronto in the 80’s, when the house only offered accommodation and solace to children with terminal cancer, and their families. This sparked her passion to work to better the experiences of the dying through decades of palliative care, hospice work, and palliative counselling. Her MA in Counselling Psychology paper addressed her internship in the palliative care unit of a downtown Toronto hospital, counselling, psycho-socially and spiritually, individuals in the EOL (end-of-life) stage of dying. She saw and felt great burdens lifted from individuals on their verge of death, by their choosing to share with an educated stranger what cannot often be shared with family and friends. Jane has practiced as a Psychotherapist for individuals, couples and families since 2000, and in recent years, has focused on psychotherapy for individuals in their EOL stage of dying and their families and friends.
Jane started her career as a businesswoman at IBM, moving from branch management there to personnel management at Molson’s. In 1990 she started university and acquired Honours BA and Honours BEd by 1993. She taught teens who could not attend or succeed in mass education classrooms (Tourette’s, congenital birth defects, tutoring). In 1998, she obtained her Honours MA, Counselling Psychology. During these years, she counselled at hospices and palliative care hospital units; in the Vanier Prison for Woman at Maplehurst Correctional Institution in Milton; at Ontario Provincial Courts, counselling inmates awaiting remand in cell blocks at the court houses; at the Newmarket Provincial Court, volunteering for the Salvation Army to help teens apply for the court diversion program; and at CAMH, counselling female inmates with mental illnesses and housed in CAMH’s prison facility.
As a result of a personal experience with a PAP test returned ‘false positive’, thank goodness!, Jane learned about HPV, called HPV Awareness to find out about HPV, met Teresa and Amelie, and is now our National School Liaison helping to arrange Teresa’s presentations across Canada to raise awareness about HPV and deliver sexual health education to teens.
Emilie Blanchard is Coordinator of the Internship Programs at HPV Awareness . Among other things, she recruits, supervises and orients students and coordinates with school administrators, HPV Awareness members and the Board of Directors.
She graduated from McGill University in 2012 with a joint degree in common law and civil law, and a minor concentration in Hispanic languages. During her law studies, she was on the varsity synchronized swimming team and she was a journalist in the arts section of Le Délit. In 2011, she participated in an academic student exchange program on human rights and cultural diversity at the Hebrew University of Jerusalem.
She was admitted to the Quebec Bar Association in 2013. She completed her articling at a small litigation firm in downtown Montreal. Since October 2014, she has been a lawyer at the Gaspé Peninsula and Magdalen Islands Community Justice Centre. She has prepared and presented multiple legal information sessions on various legal topics such as mediation and de facto spouses. She is a certified Small Claims mediator since February 2015.
She is passionate about arts and was classically trained in violin for 15 years. She is fluent in French, English and Spanish, and has basic knowledge of Portuguese.
Elizabeth Parenteau is one of the sexual health experts answering the inquiries we get from Canadian students. We receive hundreds of inquiries from Canadian youth about various sexual health topics. Elizabeth holds a BA in Sexology and is a candidate for the Master in Sexology at the Université du Québec à Montreal. She is interested in issues faced by trans people in their daily lives. Specifically, she studied identity transition into the workplace. During her masters, she did an internship at the Public health expertise and reference centre (INSPQ) on the use of new information and communications technology in the prevention of sexually transmitted infections (STIs). As part of her bachelor’s degree in Sexology, she completed an internship at IRIS Estrie, an HIV and STI prevention organization in the Eastern Townships. She also participated in Camp Sexo, organized by the University of Sherbrooke, to educate medical students on topics related to human sexuality.
Amanda Cammalleri has been involved with HPV Awareness for three years. She conducts literature searches, and restructures research into educational tools such as charts and material for our mobile application.
Amanda graduated from McGill University in 2017 with a major in Psychology and a minor in Molecular Biology and Behavioural Sciences. She has assisted in multiple labs researching mental and physical well-being. In her spare time, she has completed two full marathons and 9 half-marathons, and would one day like to combine her love of exercise and psychology in her own research.
Amélie Deschamps has been part of the HPV Awareness team since 2011, by participating in various activities and fundraisers. She is currently a student in McGill's Ba. psychology program, devoting an important amount of her time in two ongoing HPV Awareness studies. She has devoted herself to the field of research in verious branches of psychology such as child and adolescent development. Her interest in issues concerning general health, sexual education, abnormal psychology, as well as behavioural neuroscience are all related to her goal of obtaining a PhD and pursuing a career in one of these branches. Her dedication to share her ideas and help towards our organization's research projects play an important role in the organization's growth.